Huntington's Disease Associations of NZ

ABOUT US

The three associations in Auckland, Wellington and Christchurch were established around 1980 by families who were frustrated by the lack of services and felt isolated. They had become aware of similar organisations overseas, the first having been founded in 1967 by Marjorie Guthrie in the USA.

Unable to support a national organisation, the three associations function separately to meet the needs of their members, but cooperate when it is appropriate (bringing speakers from overseas, awareness weeks, conferences and our website).

In areas where the Huntington's Disease Associations cannot support their own social worker/field worker the local Multiple Sclerosis Society includes HD families as their clients: in Midland (Waikato), Bay of Plenty, Marlborough, Nelson and Invercargill.

OUR OBJECTIVES

1 To provide support and advocacy for those with Huntington's Disease.
2 To provide information and support to family members and associates.
3 To act as a source of information for professionals involved with Huntington's Disease
4 To raise public awareness on Huntington's Disease.

Boundaries are flexible to cater for individual and family needs. Membership is open.

All associations have their own trusts in which donations may be placed. 

INTERNATIONAL HUNTINGDON ASSOCIATION

All three associations belong to the International Association which was established in 1974. It organises biennial conferences at which leading carers and scientists speak, and issues are discussed and pursued. At present the problem of obtaining insurance, if at risk or with a positive predictive test, is being monitored globally.

CONTACT DETAILS

Website www.huntingtons.org.nz

AUCKLAND

Huntindon's Disease Association (Auckland) Inc.
The Neurological Support Centre
7A Taylors Road
Sandringham, Auckland
PO Box 16 238, Sandringham
Auckland 1351
Ph: (09) 815 9703
Fax: (09) 815 9704
email huntingtonsakld@xtra.co.nz

Family Liaison Coordinator:
Jo Dysart
Freephone: 0800 HD AUCK (0800 432 825)
Mobile: 027 432 8255
Office: 09 815 9703
Fax: 09 815 9704

WELLINGTON

Huntingdon's Disease Association (Wellington) Inc.
PO Box 30 420
LOWER HUTT 5040

Chairperson:
Cecil O’Neale
Ph: (04) 528 8094
Mob: (027) 213 4113

Social Worker: (Greater Wellington area)
Lynn Farrow
Ph: (04) 569 3252
Mob: (021) 344 445
Email: lfarrow.wellingtonhda@xtra.co.nz

Social Worker: (New Plymouth/ Wanganui/ Palmerston North)
Carla Perry
PO Box 3225
New Plymouth
Ph: (06) 755 3981
Mob: (0274) 966 500
Email: cperry.wellingtonhda@clear.net.nz

Social Worker: (Hawkes Bay)
Jane Harkness
122 Chaucer Rd
Napier
Ph: (06) 835 3020

Huntington’s Educator/Advisor: (Gisborne)
Gill Fraser
PO Box 572
Gisborne
Ph: (06) 868 3103
Email: gfraser.wellingtonhda@xtra.co.nz

General Enquiries
Email: info.wellingtonhda@xtra.co.nz

CHRISTCHURCH

Huntingdon's Disease Association (Christchurch) Inc.
Christchurch Community House
141 Hereford St
CHRISTCHURCH

Field Worker:
Lynne Switzer
C/- 80 Wiggins Street, Sumner
Christchurch 8081
Ph: (03) 326 5189
Email: lynne.switzer@paradise.net.nz

Chairperson:
Diane Collins
8 Fusilier Street, Hoon Hay
Christchurch 8025
Ph: (03) 960 5913
Email: ddc2@clear.net.nz

Association Secretary:
Judith Baker
PO Box 78, Cust
North Canterbury
Ph: (03) 312 5612

This information has been supplied and approved by the Huntington's Disease Associations of NZ and is copyright protected. The content and design of this page must not be reproduced electronically or in print without the written permission of UBM Medica (NZ) Ltd.